Child and Family Connections (CAP/SPOE)
Child and Family Connections is the central point for Madison, Monroe, Randolph and St. Clair Counties. It is responsible for ensuring that all referrals of children, under the age of three, to the Early Intervention system in Illinois, receive a timely response. It is also responsible for insuring that the various functions are conducted with families in a prompt, professional, and family-centered manner. For more information contact:
Child and Family Connections
1306 Wabash
Belleville, IL 62220
1 (888) 594-8364 or (618) 257-8909
Fax: (618) 257-9106
There are twenty-four Child and Family Connections in Illinois; contact the Early Intervention Central Directory "Help Me Grow Help Line" 1 (800) 323-GROW

Southern Illinois Child and Family Connections
1108 W. Willow
Carbondale, IL 62903
(888) 340-6702
Fax: (618) 549-8137

Child and Family Connections
1757 West 95th Street
Chicago, IL 60643
(773) 233-1799
Fax: (773) 233-2011
Family Assistance Program and Home-Based Support Services Program
The Family Assistance Program (FAP) pays a monthly stipend to families of children who are eligible under state statute 405 ILCS 80, which includes Down syndrome, and live with a parent where the family's yearly taxable income (gross income minus the deductions) is less than $65,000. Families receive $623 per month, up to age 18.
The Home-Based Support Services Program (HBSSP) pays for services to help adults (age 18 or older) become more independent living on their own or with their families.

Family Assistance/Home-Based Support
405 William G. Stratton Building
Springfield, IL 62765-0001
(800) 843-6154
Fax: (217) 782-9535
Mark Lynn

Family Support Network of Illinois
The mission of the Family Support Network is to unify individuals with disabilities and their families to advocate for funding, services, and community resources that strengthen and support the individual and the family directly by responding to their individual needs and empowering them to live in their own homes. The Family Support Network further seeks to ensure the continuation of all individual supports throughout the life span of the individual.
5739 West Martindale Lane
Peoria, IL 61615
(309) 693-8981
Fax: (309) 693-8962
Charlotte Cronin, Executive Director
Illinois Early Childhood Intervention Clearinghouse
Provides library and information services about early childhood and disability, and publishes the quarterly newsletter Early Intervention and Bibliography #14 on Down syndrome. Distributes money provided by the Illinois Planning Council on Developmental Disabilities to enable people with disabilities and their families to attend conferences of their choice related to disability issues. The limit is $400 per person or $600 per family every two years.
Illinois Early Childhood Intervention Clearinghouse
830 South Spring Street
Springfield, IL 62704
(800) 852-4302 or (217) 785-1364
Fax: (217) 524-5339
STARnet Region IV
STARnet (Support and Technical Assistance Regionally) serves the southern 38 counties of Illinois and promotes and supports best practices for children birth to eight and their families in early childhood special education program. The Resource Center library, with it's collection of professional/educational resource can be reached at (618) 397-8930, ext. 178, fax: (618) 397-8928 or e-mail:
The STARnet staff is available to provide resources, support, training and consultation to professionals and families of children with special needs. Provides funds of up to $150 per award for professional development and parent education to individuals; minigrants of up to $1,000; family inservice grants of up to $200; early childhood inservice grants of up to $500; and study group grants of up to $400.
STARnet Region IV
1000 South Illinois Street
Belleville, IL 62220
(618) 825-3966
Fax: (618) 825-3999

Kathy Hollowich
Project Leader/Resource Specialist (618) 825-3970
Melissa Curry
Resource Specialist (618) 825-3971
Denise Henry
Resource Specialist, (618) 833-5371
Cheryl Neville
Administrative Assistant (618) 825-3966
Carol Canavan
Program Assistant (618) 825-3968
Illinois STARnet regions include:
Individuals with Disabilities Education Act (IDEA) requires all states to provide early intervention and preschool special eduation for children with disabilities and special healthcare needs.
Coordinators of infant and toddler programs serving children from birth to age three are know as Part C programs
Janet D. Gully, Bureau Chief
Bureau of Early Intervention
Department of Human Services
623 East Adams, 2nd Floor
P.O. Box 19429
Springfield, IL 62794-9429
(217) 782-1981; (800) 323-4769 (in IL only)
Fax: (217) 524-6248

Programs for Children with Disabilites: Ages 3 through 5
Kay Henderson, Division Administrator
Center for Educational Innovation and Reform
Division of Early Childhood Education
100 North First Street, E-230
Springfield, IL 62777-0001
(217) 524-4835

Interagency Coordinating Councils (ICC) include representatives of agencies, service providers, and families. Their role is to advise and provide assistance on early intervention.
Anne Shannon, Chair
9999 West Roosevelt Road
Westchester, IL 60154
(708) 547-3597
Fax: (708) 547-4067

P.A.C.E. (Parents' Alliance for Compliance in Special Education)
P.O. Box 834
Mokena, IL 60448
1 (800) 469-2844 or (815) 469-4929
Fax: (815) 469-6807
Brad Bradley
Carol McCullough
P.A.C.E. is an organization of parents of students with special needs. We are committed to:
Illinois Advocacy Agencies
The individual served, parent or guardian has the right to appeal suspension, termination, or reduction of services.
Protection and Advocacy
103 South Washington, Suite 200
Carbondale, IL 62901
(618) 457-3304

Guardianship and Advocacy
Pine Cottage
4500 College Avenue
Alton, IL 62002
(618) 462-4561

Illinois Grievances Reporting
The individual served, parent or guardian has the right to report any infringements, to appeal adverse decisions and the right to agency staff assistance.
Illinois Department of Developmental Disabilities
401 South Spring Street
Stratton Building, Room 419
Springfield, IL 62765
1 (800) 843-6154 or (217) 542-0902
Parent Training & Information Centers (PTICS)
Illinois has three centers that provide information and training on the special education process to parents and professionals throughout the state. Please contact the PTICs for additional information regarding services, workshops and consultation procedures.
  1. Designs for Change
    Donald Moore, Executive Director
    29 East Madison, Suite 950
    Chicago, IL 60602-4809
    (312) 236-7252
    Fax: (312) 236-7927
    TTY: (312) 236-7944

  2. Family Resource Center on Disabilities
    Provides the following services:
    Charlotte Des Jardins
    20 East Jackson Boulevard, Room 300
    Chicago, IL 60604
    (800) 952-4199 or (312) 939-3513
    TTD: (312) 939-3519
    Fax: (312) 939-7297
    E-mail: or

  3. Family Matters Parent Training & Information Center
    2502 South Veterans Drive
    Effingham, IL 62401
    1 (866) 4FMPTIC [1 (866) 436-7842]
    Voice/TTY: (217) 347-5428
    Fax: (217) 347-5119
Illinois State Board of Education
Special Education
Dr. Christopher A. Koch, Acting Deputy Superintendent (217) 782-5589
Center for Educational Innovation & Reform Program Compliance
Jack Shook, Division Administrator, (217) 782-5589, Fax: (217) 782-0372
Gordon M. Riffel, Special Assistant to the Superintendent Special Education Coordination (217) 782-3371
100 North First Street
Springfield, IL 62777-0001

Division of Early Childhood Education
Pam Reising-Rechner, Principal Consultant
Illinois State Board of Education
100 North First Street, E-230
Springfield, IL 62777-0001
(217) 524-4835
Fax: (217) 785-7849

Office of State Coordinator of Vocational Education for Students with Disabilities
Sharon Full, Special Populations Coordinator
Illinois State Board of Education
100 North First Street, C-418
Springfield, IL 62777-0001
(217) 782-3370
State Public Servants, Departments & Councils
Rod R. Blagojevich
207 State House
Springfield, IL 62706
Voice (217) 782-0244 or 312-814-2121
TTY: (888)261-3336

United State Senators
Honorable Richard J. Durbin (D)
309 Hart Senate Office Bbuilding
Washington, DC 20510-1302
(202) 224-2152
Fax: (202) 228-0400

Honorable Barack Obama (D)
713 Hart Senate Office Bbuilding
Washington, DC 20510
(202) 224-2854

State Mental Health Representative for Children
Leigh Steiner, Ph.D., Associate Director
Office of Mental Health/Department of Human Services
400 Stratton Building
Springfield, IL 62765
(217) 782-7555

State Mental Retardation Program
Melissa Wright, Associate Director
Department of Human Services
100 South Grand Avenue, East, Harris II, 2nd Floor
Springfield, IL 62762
(217) 524-00260

State Developmental Disabilities Planning Council
Sheila Romano, Executive Director
Illinois Planning Council on Developmental Disabilities
830 South Spring Street
Springfield, IL 62704
Voice/TTY: (217) 782-9696
Fax: (217) 524-5339
Jill Garrett, Chair
100 West Randolph, Suite 10-600
Chicago, IL 60601

Department of Disability and Human Development
College of Health and Human Development Sciences
1640 West Roosevelt Road
Chicago, IL 60608-6904
Assistive Technology
Illinois Assistive Technology Project
Wilhelmina Gunther, Executive Director
1 West Old State Capitol Plaza, Suite 100
Springfield, Illinois 62701
Voice/TTY: (800) 852-5110
(217) 522-7985
TTY: (217)-522-9966
Fax: (217) 522-8067

Alliance for Technology Access Centers
The Alliance for Technology Access (ATA) began in 1987 as a joint project of a grass-roots organization, the Disabled Children's Computer Group, and Apple Computer™.
Northern Illinois Center for Adaptive Technology
3615 Louisiana Road
Rockford, IL 61108-6195
(815) 229-2162
Fax: (815) 229-2135

The Lekotek mission is to facilitate the inclusion of children with disabilities and developmental vulnerabilities into the full range of family and community life. Lekotek uses family-centered play as the cornerstone upon which to build inclusive environments. The Easter Seal Society of Southwestern Illinois serves the counties of Calhoun, Greene, Jersey, Macoupin, Madison, Monroe, and St. Clair.
Easter Seal Society of Southwestern Illinois
602 East Third Street
Alton, IL 62002
(618) 462-7325 [462-SEAL]
Fax: (618) 462-8170
Contact: Susan Gunning

The National Lekotek Center
2100 Ridge Avenue
Evanston, IL 60202
TTY: (800) 573-4446
Fax: (847) 328-5514
Toy Resource Helpline: 1 (800) 366-PLAY

Technical Aids & Assistance for the Disabled Center
1950 West Roosevelt Road
Chicago, IL 60608
(800) 346-2939
Voice/TTY: (312) 421-3373; Fax: (312) 421-3464
Contact: Jim McPolin/Diedre Pate

Illinois Telecommunications Access Corporation (ITAC)
Infinitec Inc.
Parent to Parent Directory
Archway, Inc.
P.O. Box 1180
Carbondale, IL 62903
(618) 549-4442, Fax:(618) 549-0231

Developmental Services Center
1304 West Bradley
Champaign, IL 61821
(217) 359-0287
Fax: (217) 356-9851

Greater Interagency Council Parent to Parent Support Network
925 West 175th Street
Homewood, IL 60430
(708) 799-2718
Fax: (708) 799-7974

Next Steps—Parents Reaching Parents
100 West Randolph, Suite 8-100
Chicago, IL 60601
Voice/TTY: (312) 814-4042
Fax: (312) 814-5849

Parent to Parent Network
825 18th Street
P.O. Box 587
Charleston, IL 61920
(217) 348-0127
Fax: (217) 348-0740

Keshet-Jewish Parents of Children with Special Needs
3210 Dundee
Northbrook, IL 60062
(847) 205-0274
Contact: Dave Gendel
State Protection & Advocacy
Equip for Equality, Inc.
Established in 1985, the mission of Equip for Equality is to advance the human and civil rights of people with disabilities in Illinois.
Zena Naiditch, CEO & President
Northeastern Region
11 East Adams, Suite 1200
Chicago, IL 60603
(312) 341-0022 or (800) 537-2632
TTY: (800) 610-2779
Fax: (312) 341-0295
Northwestern Region
1612 Second Avenue
P.O. Box 3753
Rock Island, IL 61204
(309) 786-6868 or (800) 758-6869
Fax: (309) 786-2393
Central/Southern Region
427 East Monroe
P.O. Box 276
Springfield, IL 62705
(217) 544-0464 or (800) 758-0464
Fax: (217) 523-0720
Mental Retardation/Developmental Disabilities
The Arc of Illinois
Anthony Paulauski, Executive Director
18207-A Dixie Highway
Homewood, IL 60430
(708) 206-1930
Fax: (708) 206-1171

TASH Illinois
712 Westfield Drive
St. Charles, IL 60174
(630) 584-0970
Contact: Mark Doyle

Coalition of Citizens with Disabilities in Illinois
The Coalition is a not-for-profit, grassroots organization dedicated to providing a united voice for the rights and equality of individuals with disabilities in Illinois.
300 East Monroe, Suite 100
Springfield, IL 62701
(800) 433-8848 or (217) 522-7016
Fax: (217) 522-7024

Centers for Independent Living
Illinois Network of Centers for Independent Living
1 West Old State Capitol Plaza, Suite 501
Springfield, IL 62701
(217) 525-1308
Southern Illinois Network of Centers for Independent Living
IMPACT Inc. (Serving Madison, Calhoun, Jersey, Greene, Macoupin, and Bond counties)
Cathy Contarino, Executive Director
(618) 462-1411
TTY: (618) 474-5333
Fax: (618) 474-5309
2735 East Broadway
Alton, IL 62002
Pharmaceutical Program for Persons with Limited Income coordinated by Impact, Inc.
Coordinator: Kathy Stiles

Southern Illinois Center for Independent Living
Executive Director: Bonnie Vaughn
100 North Glenview
P.O. Box 627
Carbondale, IL 62903
Voice/TTY: (618) 457-3318
Fax: (618) 549-0132

LINC, Inc.
John A. Laker, Executive Director
120 East A Street
Belleville IL 62220
Voice/TTY: (618) 235-9988
TTY: (618) 235-0451
Fax: (618) 233-3729
Monroe Randolph Center (Satellite Office)
1514 South Main Street, Suite 4
Red Bud, IL 62278
Voice/TTY: (618) 282-3700
Fax: (618) 282-2740
Legal Assistance
Chicago Lawyers' Committee for Civil Rights Under Law, Inc.
100 North LaSalle Street, Suite 600
Chicago, IL 60602-2403
(312) 630-9744
TDD: (312) 630-9749
Fax: (312) 630-1127

Council for Disability Rights
Jo Holzer, Executive Director
205 West Randolph, Suite 1650
Chicago, IL 60606
(312) 444-9484
TTY: (312) 444-1967
Family Resources
Illinois Federation of Families (Funded by the Center for Mental Health Services)
800 West Roosevelt Road, Building D-107
Glen Ellyn, IL 60137
(800) 871-8400
Fax: (630) 858-1849

Family Voices of Illinois
Family Voices is a national grass roots clearing-house for information and education about ways to assure and improve healthcare for children with disabilities and chronic conditions. Families with children with special health care needs in Illinois can now call a toll free bilingual (English and Spanish) hotline to get information about services. 700 families are members of Family Voices, and more than 1500 families received newsletters with Family Voices information included during the past year.
8331 Kimball Avenue
Skokie, IL 60076-2926
(888) 950-8683 and (773) 274-8683
Fax: (773) 274-8685
Contact: Faye Manaster Eldar

Family Matters
2502 Veterans
Effingham, IL 62401
(217) 347-347-4570
Fax: (217) 347-5119
Contact: Deb Einhorn

Friends of Handicapped Children
1001 Glendale
St. Bensenville, IL 60106
(630) 595-3208
Contact: Oronzo Peconio
Other Resources
Programs for Children with Special Health Care Needs
Division of Specialized Care for Children
Established in 1937, and administered by the University of Illinois at Chicago, the Division of Specialized Care for Children (DSCC) is the Title V agency for Illinois which provides care coordination for families and children with special health care needs. DSCC, governed by Administrative Rules, helps children with disabilities, and those who have conditions which may lead to disabilities, grow and develop to the full extent of their abilities.
Services are coordinated by a network of professional staff located in 13 regional offices throughout the state. Over 20,000 families in all 102 counties in the State of Illinois annually receive services from DSCC.
Charles N. Onufer, M.D., Director
University of Illinois at Chicago
P.O. Box 19481
2815 West Washington, Suite 300
Springfield, IL 62794-9481
(217) 793-2340

Women, Infants & Children (W.I.C.)
W.I.C. is the Special Supplemental Nutrition Program for Women, Infants and Children that provides nutrition education, health assessments, breastfeeding support and free food to help mothers, infants and children get the nutrition they need for proper growth and development. To be eligible 3 factors must be met:
  1. Category - If you are:
    • A pregnant woman
    • Breastfeeding (up to 1 year after giving birth)
    • A new mothter (up to 6 months after giving birth) or
    • A parent, guardian or caretaker who has an infant or child younger that 5 years of age
  2. Income - If your annual household income is within the following guidelines:
    W.I.C. Income Guidelines
    Family Size    Annual    Monthly    Weekly
    1 $15,892 $1,325 $306
    2 $21,479 $1,790 $414
    3 $27,066 $2,256 $521
    4 $32,653 $2,722 $628
    5 $38,240 $3,187 $736
    6 $43,827 $3,653 $843
    7 $49,414 $4,118 $951
  3. When you are screened by the W.I.C. clinic and found to have a medical or diet health risk like low iron, low weight gain or need to improve your diet.

Healthy Moms/Healthy Kids and W.I.C. locations:
Coordinated Youth & Human Services
2016 Madison Avenue
Granite City, IL 62040
Toll free: 1 (877) 842-5028; (618) 877-4333
Madision County Health Department Building
2119 Troy Road
Edwardsville, IL 62025
Toll free: (877) 842-6078; (618) 692-8380
Alton Plaza
1842 East Broadway
Alton, IL 62002
Toll free: (877) 842-9292; (618) 462-8155

Project Choices (Children Have Opportunities in Inclusive Community Environments and Schools)
Project CHOICES provides free on-site technical assistance to school districts to assist them in providing education for children with disabilities ages 3-21 in preschool settings and general education classrooms and is funded by a grant form the Illinois State Board of Education.
6S331 Cornwall Road
Naperville, IL 60540
(630) 778-4508
Fax: (630) 778-1791

Childcare Resource & Referral
207 West Jefferson, Suite 301
Bloomington, IL 61701
(309) 828-1892
Fax: (309) 828-0526
Contact: Pam Zook

Disability Research Network (DRN)
DRN (previously ABLEDATA) is an information and referral service for disability related topics and funded by a grant from the Illinois Department of Rehabilitation Services (DORS) and is located at the Springfield Center for Independent Living (SCIL).
426 West Jefferson
Springfield, IL 62702
1 (800) 447-4221 or (217) 523-2587
Fax: (217) 523-0427

Challenge Unlimited, Inc.
Member of the Illinois Association of Rehabilitation Facilities, Inc. Provides opportunities for individuals with disabilities which assist them to live, work and participate in the community.
#4 Emmie L. Klaus Lane
Alton, IL 62002
(618) 465-0044
Fax: (618) 465-0056

SSI Coalition
Voice/TTY: (800) 427-0766 or (312) 223-9600

Special Olympics of Illinois