Riverbend Down Syndrome Association • New Parent Packet

New Parent Packet

The intended audience are families with children with Down syndrome in Southwestern Illinois. For more information or to join the Riverbend Down Syndrome Association, e-mail: secretary@riverbendds.org.

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Introduction
Parent to Parent
- Fathers' Reactions to Their Child's Diagnosis of Down Syndrome
- Snappy Retorts
- Welcome to Holland
- You Are Not Alone: For Parents When They Learn That Their Child Has A Disability
- Fathers' Perspectives
  - 2009 Keynote Address by Paul Daugherty
  - A Father's Perspective by Brett Chun
  - A Friend for Christmas by George F. Will
  - Adventures in the Mainstream excerpts by Greg Palmer
    - Saturday, June 22, 2002. Aran Islands
    - Friday, June 28, 2002, 10 p.m.
    - Saturday, May 22, 2004
  - Charity Matthews (3/6/2000 - 6/9/2000) by Tim Matthews
  - Citizenship and Disability by Michael Bérubé
  - Daddy's Brightest Star by Pete Loftis
  - Down Syndrome and Evidence of the Divine by Doug Billings
  - Down's syndrome: 'She wasn't the daughter I wanted' by Edward Batha
  - Family Values by Michael Bérubé
  - Father to Father by Josh Carpenter
  - For Corrie by Eric C. Last
  - For "Reading" Read "Listening" by Leslie W. Duffen
  - Honoring Christian Pueschel's Legacy by Siegfried Pueschel, M.D.
  - I Didn't Get It by Alan Afualo
  - Jon Will's Aptitudes by George F. Will
  - Learning about Happiness from Persons with Down Syndrome: Feeling the Sense of Joy and Contentment by Richard J. Robison
  - Let's Change our Focus Regarding Down Syndrome by David M. Perry
  - Life as Jamie Knows It by Michael Bérubé
  - Life Goes On by Frank Burke
  - Life with Down's Syndrome by Glenn Vatter
  - Making the Grade by Michael Bérubé
  - Moving Beyond Stereotypes by Bradley Bane
  - My Son and 'Life's Lottery' by George F. Will
  - Ordinary Days by Brian Long
  - Offering Hope, Not Don'ts by Jerry E. Sullivan
  - Part of a Plan: Creation or Elimination by James Bernard Gaffney
  - Reflections of a Father: Jordan and I by Tom Bushnell
  - Special Needs Children by Darrell Roquemore
  - The Best Hug I Ever Got by Larry Jansen
  - The End of Cute by Greg Palmer
  - The Joy of Having a Child with Down Syndrome by Giuseppe Latini
  - The Perfect Daughter by Michael T. Bailey
  - Tim by Paul Carter
  - Violence in the Hospital? by Gordon Slater
  - We Still Don't Know what 'Normal' Really Is by Michael Bérubé
  - You Should See Her Teach by Michael Flannery
Support Groups
- Contact the Down Syndrome Association of Greater St. Louis [8420 Delmar Blvd., Suite 506, St. Louis, MO 63124. (314) 961-2504, Fax: (314) 989-1579, E-mail: dsagsl@msn.com] and request a new parent packet
- Illinois Down Syndrome Support Groups
- National Down Syndrome Organizations
IDEA '97
- Contact Family Connections to enroll in Early Intervention
- State of Illinois Infant/Toddler and Family Rights under IDEA for the Early Intervention System
- Individualized Education Plan Guide for Parents
- State of Illinois IDEA directory
For Teachers
Medical
- Download the 1999 Healthcare Guidelines for Individuals with Down Syndrome and provide a copy to your child's doctor
- Male Fertility Abstracts
Finances
- Apply for W.I.C. if annual household income is within guidelines, e.g., $32,653 for a family of 4.
Free Resources
- Request Bibliography #14 on Down syndrome and subscribe to Early Intervention, the quarterly newsletter of the Illinois Early Childhood Intervention Clearinghouse
- Contact the Lekotek free toy lending library
- Subscribe to STARnet Region IV The Four Star Edition
- Subscribe to Disability Solutions
- Subscribe to Challenge Unlimited, Inc. Developments
- Subscribe to the Family T.I.E.S. Network newsletter
Media Kit
- People with Down Syndrome
Ethics & Eugenics