Riverbend    Down Syndrome Parent Support Group

New Parent Packet

•  Introduction
  • The intended audience are families with children with Down syndrome in Southwestern Illinois. For more information or to join the Riverbend Down Syndrome Parent Support Group contact Sara or Tammy, E-mail: support@riverbendds.org or call (618) 830-6562
  • Breastfeeding a Child with Down Syndrome
  • FAQ on Breastfeeding and Down Syndrome
  • Living with Down Syndrome: The Family Experience
  • Living with Down Syndrome: The New Generation
  • Parent Life Management and Transformational Outcomes When a Child has Down Syndrome
  • Parental Stress and Coping Abstracts
  • Siblings Abstracts
  • Stress and Parenting
  • Toilet Training
  • Frequently Asked Questions
•  Parent to Parent
  • Fathers' Reactions to Their Child's Diagnosis of Down Syndrome
  • Snappy Retorts
  • Welcome to Holland
  • You Are Not Alone: For Parents When They Learn That Their Child Has A Disability
  •  Fathers' Perspectives
    • A Father's Perspective by Brett Chun
    • A Friend for Christmas by George F. Will
    • Adventures in the Mainstream excerpts by Greg Palmer
      • Saturday, June 22, 2002. Aran Islands
      • Friday, June 28, 2002, 10 p.m.
      • Saturday, May 22, 2004
    • Charity Matthews (3/6/2000 - 6/9/2000) by Tim Matthews
    • Citizenship and Disability by Michael Bérubé
    • Daddy's Brightest Star by Pete Loftis
    • Down Syndrome and Evidence of the Divine by Doug Billings
    • Down's syndrome: 'She wasn't the daughter I wanted' by Edward Batha
    • Family Values by Michael Bérubé
    • Father to Father by Josh Carpenter
    • For Corrie by Eric C. Last
    • For "Reading" Read "Listening" by Leslie W. Duffen
    • Honoring Christian Pueschel's Legacy by Siegfried Pueschel, M.D.
    • I Didn't Get It by Alan Afualo
    • Jon Will's Aptitudes by George F. Will
    • Learning about Happiness from Persons with Down Syndrome: Feeling the Sense of Joy and Contentment by Richard J. Robison
    • Let's Change our Focus Regarding Down Syndrome by David M. Perry
    • Life as Jamie Knows It by Michael Bérubé
    • Life Goes On by Frank Burke
    • Life with Down's Syndrome by Glenn Vatter
    • Making the Grade by Michael Bérubé
    • Moving Beyond Stereotypes by Bradley Bane
    • My Son and 'Life's Lottery' by George F. Will
    • Ordinary Days by Brian Long
    • Offering Hope, Not Don'ts by Jerry E. Sullivan
    • Part of a Plan: Creation or Elimination by James Bernard Gaffney
    • Reflections of a Father: Jordan and I by Tom Bushnell
    • Special Needs Children by Darrell Roquemore
    • The Best Hug I Ever Got by Larry Jansen
    • The End of Cute by Greg Palmer
    • The Joy of Having a Child with Down Syndrome by Giuseppe Latini
    • The Perfect Daughter by Michael T. Bailey
    • Tim by Paul Carter
    • Violence in the Hospital? by Gordon Slater
    • You Should See Her Teach by Michael Flannery
    • We Still Don't Know what 'Normal' Really Is by Michael Bérubé
•  Support Groups
  • Contact the Down Syndrome Association of Greater St. Louis [8420 Delmar Blvd., Suite 506, St. Louis, MO 63124. (314) 961-2504, Fax: (314) 989-1579, E-mail: dsagsl@msn.com] and request a new parent packet
  • Illinois Down Syndrome Support Groups
  • National Down Syndrome Organizations
•  IDEA '97
  • Contact Family Connections to enroll in Early Intervention
  • State of Illinois Infant/Toddler and Family Rights under IDEA for the Early Intervention System
  • Individualized Education Plan Guide for Parents
  • State of Illinois IDEA directory
•  For Teachers
  • Developing the Educational and Social Needs of Children with Down Syndrome
  • From a Teacher's Perspective - Full Circle on Inclusion
  • Including Pupils with Down's Syndrome. Primary Education
  • Including Pupils with Down's Syndrome. Secondary Education
  • Special Education Support Service: Information on Down Syndrome
  • Teaching Students with Down Syndrome
•  Medical
  • Download the 1999 Healthcare Guidelines for Individuals with Down Syndrome and provide a copy to your child's doctor
  • Male Fertility Abstracts
•  Finances
  • Apply for W.I.C. if annual household income is within guidelines, e.g., $32,653 for a family of 4.
•  Free Resources
  • Request Bibliography #14 on Down syndrome and subscribe to Early Intervention, the quarterly newsletter of the Illinois Early Childhood Intervention Clearinghouse
  • Contact the Lekotek free toy lending library
  • Subscribe to STARnet Region IV The Four Star Edition
  • Subscribe to Disability Solutions
  • Subscribe to Challenge Unlimited, Inc. Developments
  • Subscribe to the Family T.I.E.S. Network newsletter
•  Media Kit
  • People with Down Syndrome
•  Ethics & Eugenics
  • Confronting the Distortions: Mothers of Children with Down Syndrome and Prenatal Testing
  • Eradicating Handicap
  • In Praise of Downs Syndrome
  • Life Worth Living
  • NDSC Position Statement on Prenatal Testing and Eugenics: Families' Rights and Needs Eradicating Handicap
  • The Case of Phillip Becker
  • The Killing Will Not Stop
  • The Right to Die
  • Abstracts