Riverbend

Down Syndrome Association

New Parent Packet

The intended audience are families with children with Down syndrome in Southwestern Illinois. For more information or to join the Riverbend Down Syndrome Association, e-mail: secretary@riverbendds.org.

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Introduction
Parent to Parent
- Fathers' Reactions to Their Child's Diagnosis of Down Syndrome
- Snappy Retorts
- Welcome to Holland
- You Are Not Alone: For Parents When They Learn That Their Child Has A Disability
- Fathers' Perspectives
  - 2009 Keynote Address by Paul Daugherty
  - A Father's Perspective by Brett Chun
  - A Friend for Christmas by George F. Will
  - Adventures in the Mainstream excerpts by Greg Palmer
    - Saturday, June 22, 2002. Aran Islands
    - Friday, June 28, 2002, 10 p.m.
    - Saturday, May 22, 2004
  - Charity Matthews (3/6/2000 - 6/9/2000) by Tim Matthews
  - Citizenship and Disability by Michael Bérubé
  - Daddy's Brightest Star by Pete Loftis
  - Down Syndrome and Evidence of the Divine by Doug Billings
  - Down's syndrome: 'She wasn't the daughter I wanted' by Edward Batha
  - Family Values by Michael Bérubé
  - Father to Father by Josh Carpenter
  - For Corrie by Eric C. Last
  - For "Reading" Read "Listening" by Leslie W. Duffen
  - Honoring Christian Pueschel's Legacy by Siegfried Pueschel, M.D.
  - I Didn't Get It by Alan Afualo
  - Jon Will's Aptitudes by George F. Will
  - Learning about Happiness from Persons with Down Syndrome: Feeling the Sense of Joy and Contentment by Richard J. Robison
  - Let's Change our Focus Regarding Down Syndrome by David M. Perry
  - Life as Jamie Knows It by Michael Bérubé
  - Life Goes On by Frank Burke
  - Life with Down's Syndrome by Glenn Vatter
  - Making the Grade by Michael Bérubé
  - Moving Beyond Stereotypes by Bradley Bane
  - My Son and 'Life's Lottery' by George F. Will
  - Ordinary Days by Brian Long
  - Offering Hope, Not Don'ts by Jerry E. Sullivan
  - Part of a Plan: Creation or Elimination by James Bernard Gaffney
  - Reflections of a Father: Jordan and I by Tom Bushnell
  - Special Needs Children by Darrell Roquemore
  - The Best Hug I Ever Got by Larry Jansen
  - The End of Cute by Greg Palmer
  - The Joy of Having a Child with Down Syndrome by Giuseppe Latini
  - The Perfect Daughter by Michael T. Bailey
  - Tim by Paul Carter
  - Violence in the Hospital? by Gordon Slater
  - We Still Don't Know what 'Normal' Really Is by Michael Bérubé
  - You Should See Her Teach by Michael Flannery
Support Groups
- Contact the Down Syndrome Association of Greater St. Louis [8420 Delmar Blvd., Suite 506, St. Louis, MO 63124. (314) 961-2504, Fax: (314) 989-1579, E-mail: dsagsl@msn.com] and request a new parent packet
- Illinois Down Syndrome Support Groups
- National Down Syndrome Organizations
IDEA '97
- Contact Family Connections to enroll in Early Intervention
- State of Illinois Infant/Toddler and Family Rights under IDEA for the Early Intervention System
- Individualized Education Plan Guide for Parents
- State of Illinois IDEA directory
For Teachers
Medical
- Download the 1999 Healthcare Guidelines for Individuals with Down Syndrome and provide a copy to your child's doctor
- Male Fertility Abstracts
Finances
- Apply for W.I.C. if annual household income is within guidelines, e.g., $32,653 for a family of 4.
Free Resources
- Request Bibliography #14 on Down syndrome and subscribe to Early Intervention, the quarterly newsletter of the Illinois Early Childhood Intervention Clearinghouse
- Contact the Lekotek free toy lending library
- Subscribe to STARnet Region IV The Four Star Edition
- Subscribe to Disability Solutions
- Subscribe to Challenge Unlimited, Inc. Developments
- Subscribe to the Family T.I.E.S. Network newsletter
Media Kit
- People with Down Syndrome
Ethics & Eugenics