|July 1998 Issue||
We thank Peggy and Marc Mitchell, of Collinsville, for their kind hospitality at our last meeting. The Mitchell's provided baby sitters, homemade pizza and a delicious salad. To borrow the videotapes viewed at this meeting, call Victor or Gloria Bishop at (618) 208-1659.
STARnet Illinois Region IV Workshops
Nearly $10 Million Will Be Distributed Over Five Years by National Institutes of Health
Document has been removed from http://www.pathfinder.com/
Contact: Alexandra Kennaugh Director of Community Relations, Eleanor Roosevelt Institute, 303-333-4515.
DENVER, June 15 PRNewswire The Eleanor Roosevelt Institute has been awarded nearly $10 million from the National Institutes of Child Health and Human Development for a five year study of learning in people with Down syndrome. "This study builds upon the last fifteen years of research on the genetics of Down syndrome and is taking the first aggressive step to extend the research towards clinical applications," said David Patterson, President and Senior Fellow of the Eleanor Roosevelt Institute.
Pioneering scientists at the Institute and collaborating institutions will identify and characterize genes involved in the neurological and cognitive symptoms of people with Down syndrome. The families of the Mile High Down Syndrome Association are also supporting this effort.
Down syndrome is the leading genetic cause of mental retardation in America, and is the most common chromosomal abnormality in the human population. Over 6,000 babies with Down syndrome are born in the U.S. each year, affecting boys and girls evenly.
The Eleanor Roosevelt Institute is an independent research institute studying cancer, premature aging, genetic diseases, and birth defects since 1961. The Institute is founded on the belief that research is the most effective long-term approach to the eventual conquest of human afflictions.
Dorling Kindersley Family Learning Distributors
The National Information Center for Children and Youth with Disabilities (NICHY) Illinois Fact Sheet
STATE DEPARTMENT OF EDUCATION: SPECIAL EDUCATION
PROGRAMS FOR INFANTS AND TODDLERS AGES BIRTH THROUGH 2
PROGRAMS FOR CHILDREN WITH DISABILITES:
AGES 3 THROUGH 5
STATE MENTAL HEALTH REPRESENTATIVE FOR CHILDREN
400 Stratton Building|
Springfield, IL 62765
STATE MENTAL RETARDATION PROGRAM
STATE DEVELOPMENTAL DISABILITIES PLANNING COUNCIL
PROTECTION AND ADVOCACY AGENCY
PROGRAMS FOR CHILDREN WITH SPECIAL HEALTH CARE NEEDS
MENTAL RETARDATION/DEVELOPMENTAL DISABILITIES
Down Syndrome Newsletter Articles
Daddy's Brightest Star by Pete Loftis. Reprinted from Special Delivery, the newsletter of the Down Syndrome Association of Jacksonville, Spring 1998.
On this New Year's Eve we walked out to the beach under thousands of stars. We laid on our backs, shoulder to shoulder, gazing up at the stars, telling stories.
We started a game of naming the stars after our favorite friends and family members. Tate would name several people and say, "Daddy, your turn." He selected the brightest star should be named for him. Tate conceded. He liked being the brightest star.
As a father to Tate I often wonder now if people who observe us together really understand how lucky I am to be his Dad. Do they have a clue? What do they see? Let me tell you what they would see if they were looking through my eyes.
A seven year old boy who is almost pretty, with his mother's face, sweet little eyes and a quiet confidence about him. He is a people magnet. He jumps from the school bus running with arms out screaming "Daddy, Daddy." Times spent one on one with Tate are often filled with laughter. I love his laugh.
He steps outside and says, "hi guys" to the little friends who come over to play soccer and chase each other around. Tate seems to be unaware of how small he is. His friends don't care either. They seem to allow him to be the boss in his own yard. The activities circle around him as he directs the soccer drills. He does not tolerate fooling around while playing soccer - everyone must focus.
Homework is done with great diligence. The computer is his friend. He is an excellent listener who constantly strives to improve. Reading, writing and counting are fun to practice with a positive attitude and enthusiasm.
The yellow belt in karate and trophies in soccer are not as important to him as the relationships he develops with other kids. He enjoys hiking in the woods, riding on the golf cart, making two-foot putts on the practice green with his sawed off putter. We spend endless evenings kicking the soccer ball, throwing the football and running on the beach with the dogs.
When he says "morning" every day starts off on a positive note. When I read him a story at bedtime and we say the Lord's Prayer, every evening ends with an innocent sweetness. Sometimes I lay beside him and watch him sleep.
Tate instills great confidence in me. In his opinion my singing is a work of art. My jump shot is as good as any Chicago Bull. Every fish I catch is big. Every cheese egg I cook is superb. When my seven iron slices into the water he is undeterred, saying "what happened Daddy?" as if a sudden gust of wind blew the ball in the water. There's no wonder why he is my best friend.
When Tate was born I comforted his Mom and pretended to be as proud as any new father would be. My father told me soon after Tate was born, "son, you must be very proud to have this little boy." I really wasn't but pretended to be. Tate is seven now and I quit pretending many years ago. A good friend told me this child was given to us for a reason. What did they see that I didn't?
There are many things I would change in my life if I could do it all over again. Tate is not one of those things. He is my brightest star.