Riverbend Down Syndrome Parent Support Group Web Site en-US http://www.riverbendds.org Copyright © 1997-2010 Riverbend Down Syndrome Parent Support Group. All rights reserved. Sat, 23 Jan 2010 20:30:00 CDT 563219 webmaster@riverbendds.org (Victor J. Bishop) http://www.riverbendds.org/images/riverbend.png http://www.riverbendds.org 18 18 Riverbend Down Syndrome Parent Support Group http://www.riverbendds.org/longvidadose.html http://www.riverbendds.org/longvidadose.html Sat, 23 Jan 2010 20:30:00 CDT Longvida is the most bioavailable form of curcumin, an powerful antioxidant with experimental evidence decreasing amyloid plaques. http://www.riverbendds.org/longvidaab.html http://www.riverbendds.org/longvidaab.html Sat, 23 Jan 2010 20:30:00 CDT Longvida journal abstracts. http://www.riverbendds.org/dec09.html#gautier http://www.riverbendds.org/dec09.html#gautier marthe.gautier@free.fr (Marthe Gautier) Wed, 20 Jan 2010 22:45:00 CDT Fifty years ago, I was co-author of the first paper asserting the presence of a supernumerary chromosome in Down's syndrome (called mongolism in France at that time). This first autosomal chromosomal abnormality was called Trisomy 21. It seemed to me historically interesting to bring my own testimony as an actor in this discovery. http://www.riverbendds.org/dec09.html#brignoli http://www.riverbendds.org/dec09.html#brignoli Mon, 18 Jan 2010 15:50:00 CDT Dear Dragen, Remember when you asked me, "Write me a letter about death"? I didn't forget. So here is your letter about death. In the Bible it says, "The Lord, our God, holds the keys of death." This is true and real. This is what God promises us. And Jesus promises us. And Jesus always tells the truth. Because he is truth, he cannot lie. When it is time to die, Jesus will come with a key to the door of death. He will open the door and then together with the angels and saints and Mary, the Blessed Mother, you will float up over the rooftops and trees and everything, and you will just float up to heaven with Jesus. You can just relax, because Jesus will do it for you. http://www.riverbendds.org/dec09.html#lane http://www.riverbendds.org/dec09.html#lane yumaschin@aol.com (George Michael Lane) Mon, 18 Jan 2010 15:45:00 CDT In endorsing the book, Cardinal Justin F. Rigali, Archbishop of Philadelphia says, "A Different Kind of Perfect presents the compelling memoir of a family's journey through suffering and sacrifice as they seek to remain faithful to the Church's teaching on the inviolable dignity of all human life. http://www.riverbendds.org/dec09.html#cole http://www.riverbendds.org/dec09.html#cole purplemonkey003@yahoo.com (Debbie Cole) Mon, 18 Jan 2010 15:10:00 CDT As an occupational therapist and a parent of a child with Down syndrome, I would like to share my thoughts about negative portrayals of sheltered workshops and day programs. There are currently many adults with Down syndrome who are happily and productively employed at area sheltered workshops. These employees are working at a level commensurate with their intellectual abilities. They and their caregivers feel that they are being challenged appropriately. http://www.riverbendds.org/billings.html http://www.riverbendds.org/billings.html billingskc@gmail.com (Doug Billings) Sat, 07 Nov 2009 14:00:00 CDT Children are wonderful and awesome portals. When we gaze upon them we can be transported to alternate states of consciousness. We can see glimpses of the divine spark - the essence of God. I have two sons. Grant is fifteen and Michael is six. Grant is a typical high school sophomore. (Notice how I didn't call him a "normal" high school sophomore - I'll explain later). Michael has Down syndrome and is as equally wonderful, loved and welcomed as his brother. Both have shown me glimpses of the divine. Each is unique and innocent in his own way and have many times over shown me pathways to God. http://www.riverbendds.org/sept09.html#donald http://www.riverbendds.org/sept09.html#donald edonald@bnd.com (Elizabeth Donald) Sun, 18 Oct 2009 01:05:00 CDT She brought home two medals. And she did it, in part, for her father. It's a tough time for Karrie. Her father, Richard Brown, is currently in hospice. Her mother, Sue Brown, said they weren't sure Richard would make it through the weekend while Karrie competed. "But he wanted her to go; we're doing this for Dad," Sue Brown said. Karrie has Down syndrome and mild autism. http://www.riverbendds.org/sept09.html#beckham http://www.riverbendds.org/sept09.html#beckham bevbeckham@aol.com (Beverly Beckham) Sun, 18 Oct 2009 01:05:00 CDT Blessed is a word I find myself saying a lot lately. How blessed I am. How blessed my family is. How blessed we are to have Lucy. Six years ago, I didn't feel blessed. Lucy, my first grandchild, my daughter's child, was 12 hours old when we learned she had Down syndrome. We wept. Three days later, we were told she had holes in her heart and would need surgery. We took her home and fed her and held her and rocked her and sang to her. And we prayed. http://www.riverbendds.org/sept09.html#frankel http://www.riverbendds.org/sept09.html#frankel TFrankel@post-dispatch.com (Todd C. Frankel) Sun, 18 Oct 2009 01:05:00 CDT Pujols, playing first base about 40 feet away, reached Tepas first. He knelt beside him. He urged him to lie down. Pirates first base coach Perry Hill arrived next. He grabbed Tepas' feet. Hill had never seen a fan suffer a fall like that. Stadium staff ran over. Trainers from both teams and paramedics crowded around Tepas. Pujols still knelt by his head. http://www.riverbendds.org/pickard.html http://www.riverbendds.org/pickard.html bethpickardflute@live.co.uk (Bethan Mair Pickard) Tue, 29 Sep 2009 20:10:00 CDT The musical reactions of individuals with Down's syndrome have provided the inspiration and foundation for numerous research studies during the twentieth century, although definitive conclusions on the topic have yet to be reached. Much of the existing research is outdated, referring to a society in a time gone by, when unique and beautiful individuals were sadly segregated from their families and communities and herded together in institutions around the country. This study aims to draw information from past research but also to begin original work in a modern day setting, acknowledging the current situations of people with Down's syndrome. http://www.riverbendds.org/sierk.html#I http://www.riverbendds.org/sierk.html#I Jon@SierkPediatricDentistry.com (Jonathan Sierk) Sun, 13 Sep 2009 20:15:00 CDT Children with Down syndrome are at an increased risk for developing problems with their teeth and gums. Early preventive dental care and rigorous home hygiene will help reduce many of these problems and eliminate some of them entirely. This article will relate the problems children can develop, describe how Down syndrome can complicate the oral condition, and finally instruct children and families on how to care for the teeth at home. http://www.riverbendds.org/sierk.html#II http://www.riverbendds.org/sierk.html#II Jon@SierkPediatricDentistry.com (Jonathan Sierk) Sun, 13 Sep 2009 20:15:00 CDT Early preventive dental care is very important to the health of children with Down syndrome. A child's first dental visit can cause anxiety for parents, the child and dentist alike. The purpose of this article is to explain why early dental care is important for children with Down syndrome, to describe the typical first dental visit for young children, and finally to give suggestions about what can be done to make a child's initial visit to the dentist a positive experience.