Down Syndrome Clinic
St. Louis Children's Hospital, Department of Pediatrics
Division of Genetics and Genomic Medicine
Washington University School of Medicine
St. Louis, MO 63110
(800) 678-5437 or (314) 454-6093
Fax: (314) 454-2075
E-mail: downsyndromecenter@kids.wustl.edu
- Medical Director
- Kathy Grange, MD
- Alison Morrison, PNP
- Division Director
- Jonathan Gitlin, MD
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The comprehensive, multi-disciplinary clinic accepts patients of any age through age 21, including prenatally diagnosed cases, by:
- Arranging appointments at one location with the specialists your child needs to see.
- Arranging your appointments in the most efficient manner so you and your child gain the maximum benefit.
- Using a collaborative approach because our team of experienced caregivers is in one location.
Albert Pujols Wellness Center for Adults with Down Syndrome
St. Luke's Hospital
Mr. and Mrs. Theodore P. Desloge, Jr. Outpatient Center
121 S. Woods Mill Road
Chesterfield, MO 63017
(Located directly across from the hospital on the west side of Highway 141.)
Appointments: (314) 576-2300
Patients 17 years of age or older will access the Center by making an initial appointment. After a physician visit for a comprehensive physical, patients will be referred to various services focused on nutrition, exercise, safety and social/emotional well-being. These services are specifically designed for adult Down syndrome patients.
Down Syndrome Clinic
University Physicians Medical Building
1101 Hospital Drive
Columbia, Missouri 65212
(573) 884-6735
(573) 882-6921
- Geneticists
- Stephen Braddock, M.D.
- Judith Miles, M.D., Ph.D
- Genetic Counselors
- Janda Buchholz, M.S.
- Jennifer Kussmann, M.S
- Dawn Peck, M.S.
The clinic is held on the third Thursday of every month and is designed specifically to meet the needs of children with Down syndrome and their families. The clinic is staffed by Pediatric Geneticists and Genetic Counselors who work in conjunction with specialists in Ophthalmology, Audiology, ENT, Nutrition, Development, Child Psychiatry, Psychology, Endocrinology, Neurology, Orthopedics, Pulmonary specialists, Immunology and Cardiology. These specialists work with your local pediatrician to provide the optimum medical care.
Down Syndrome Clinic
The Children's Mercy Hospital
2401 Gillham Road
Kansas City, MO 64108-4619
David Harris, MD
(816) 234-3290
Fax: (816) 346-1378
Jill Rogers, MS
Section of Genetics
(816) 234-3290
Fax: (816) 346-1378
Parent Coordinator: June Rouse, BA
(816) 234-3290
Fax: (816) 346-1378
Michael Begleiter, MS
The Down Syndrome Clinic's core team, which meets twice a month from 8:30 a.m. until noon, comprises a pediatrician, social worker, occupational therapist, parent advocate and a psychologist.
Because children with Down syndrome have various needs at certain stages of their development, the clinic pulls in different specialists, depending on the age and specific needs of each child and family.
Pediatric specialties frequently consulted are:
- Audiology
- Speech Pathology
- Ophthalmology
- Genetic Counseling
- Cardiology
- Developmental Pediatrics
- Behavioral Pediatrics
- Physical Therapy
- Orthopedics
- Ear, Nose & Throat
- Nutrition
- Dentistry
The clinic follows the Preventitive Medicine Checklist issued by The National Down Syndrome Clinics Network and confers with this network for updates.
A unique part of the Down Syndrome Clinic format involves a group session held the morning of each clinic. Families meet each other and ask questions or express their concerns to the core team members in an informal, relaxed setting. The clinic is designed for consultation and evaluation and is not a substitute for primary care.