February 1997 Issue

Thank you very much for joining us for lunch on Tuesday, February 25, and letting us introduce our baby boy, Emmanuel, to you. Too early to call this a newsletter or bulletin, it will be named The Moonlight Issue. Following is the address, phone and children list of those of us attending the lunch at The Moonlight Restaurant in Alton. If you know of other parents in our area interested in being included in this list, let us know. Thanks to Missy who distributed the agenda for the Down Syndrome Association of Greater St. Louis Annual Conference on March 15, where Dixie Lawrence Tafoya will speak about Targeted Nutritional Intervention.

Bishop, Gloria & Victor
Emmanuel 12/21/1996

Campbell, Julie & Rick
Brian 8/16/1995

Edwards, Sara & Steve
Josephine 9/3/1995

Kane, Joan & John
Joe 8/3/1990

Kichline, Missy & Brian
Samantha (Sam) 8/27/1990


Illinois Early Childhood Intervention Clearinghouse
830 South Spring Street
Springfield, IL 62704
(800) 852-4302 or (217) 785-1364
Fax: (217) 524-5339
E-mail: clearinghouse@springnet1.com
Request free Bibliography #14 on Down Syndrome

Trisomy 21 Research Foundation, Inc.
Parent Information
TRI - Gonzalez Division
c/o Mikki Evans
40478 Adele Street
Gonzalez, Louisiana 70737

Physician/Research Information
(504) 769-8747
Fax: (504) 761-8987
Parent Support and TRI Membership
11718 Barrington Ct.
Los Angeles, CA 90049

International Nutrition, Inc. (NuTriVene-D)
11615 Crossroads Circle, Suite D
Middle River, MD 21220
1 (800) 899-3413

Babies with Down syndrome: A new parents guide, 2nd Edition, Edited by Karen Stray-Gunderson, Woodbine House, 1995. This is the famous "white book". Free (we have an extra copy).


Quoted from a letter from Gary Lee, P.D., Sunnymede Pharmacy, dated April 5, 1995 addressed to Dixie Lawrence:

We would like to inform your organization about the legality of prescribing Piracetam by physicians in the United States. This chemical is available to us through one of our chemical sources in the U.S. and is not being seized by the FDA or anyone else for that matter. It is completely legal for us to stock this chemical. Any physician that wishes to prescribe this medication can do so.

Father's Journal

Soccer Moms, Beware!
We requested from The National Down Syndrome Society an information packet. A picture of a boy in a soccer uniform caught my attention since I played soccer in college, having learned it in Mexico. That night, heaven sent me dream: I was teaching my son Emmanuel to play soccer, and in that beautiful dream I was showing my son how to do an overhead bicycle kick. I know my son will have an unfair advantage competing against Soccer Mom trained kids, because every night I keep training my son in my dreams.

Corky's Nose
Last week we went to Barnes & Noble to pick up Michael Bérubé's Life as we know it. I wandered through the aisles, with my son Emmanuel in my arms, who with wide-open eyes, learned to be a book lover, just like his parents. I found Joseph Campbell's The Hero with a Thousand Faces on sale, and bought it giving my son an example on how to be thrifty. Emmanuel is not aware that to make room for him in our crowded apartment, we had to pack and store ten boxes of books, else my thrifty example would have made less of an impact. Then we searched for books on Down syndrome and found only two: the first was a kind of Joy of Sex, which my 7-week-old son disregarded; the other book was the Corky book, which we did peruse. Surely my son noticed Corky's nose and right then decided that he too, would grow a nasal bridge.