Down's Heart Group
P.O. Box 4260
Dunstable, Beds, LU6 2ZT, United Kingdom
Tel. & Fax: 0845 166 8061
On-line community: http://groups.yahoo.com/group/Downs-Heart/
|Reprinted with the permission of Penny Green, Director|
© 1998 Down's Heart Group
UK Charity Nº 1011413
HEART CHILDREN: A PRACTICAL HANDBOOK FOR PARENTS
Pub. Heart Line Association 1992, ISBN 0951527010, £4.50
A detailed and informative handbook containing clear explanatory diagrams of up to twenty different heart problems as well as information on heart operations, what to expect in hospital and various problems you may encounter such as feeding. This book is an absolute necessity for anyone whose child is to have cardiac surgery.
NEW APPROACHES TO DOWN SYNDROME
Ed. Brian Stratford and Pat Gunn
Pub. Cassell 1996, ISBN 0304333506, £35.00
This is the updated edition of 'Current approaches to Down Syndrome' and is a comprehensive account of recent developments and practical implications by various international experts. This book is very interesting for parents and a must for professionals.
DOWN SYNDROME: THE FACTS (2nd edition)
By Mark Selikowitz
Pub. Oxford University Press 1997, ISBN 0192626620, £8.99
A very up to date concise little book full of facts and practical advice. A handy book to refer to again and again. Written by an Australian consultant paediatrician, it is easy to read and covers all the topics in a clear and accessible style.
THE DOWN'S SYNDROME: A PRACTICAL GUIDE FOR PARENTS AND CARERS
By Dr. Richard Newton
Pub. Vermillion 1997, ISBN 0091815096, £8.99
A practical comprehensive handbook, particularly useful for those wanting a good introduction to the medical aspects of the condition. Written in conjunction with the Down's Syndrome Association it contains up to date information on current medical knowledge and advice on the care of babies and young children as well as emotional development and integration into society.
DOWN'S SYNDROME: AN INTRODUCTION FOR PARENTS
By Cliff Cunningham
Pub. Brookline Press 1996, ISBN 1571290095, £9.99
A comprehensive introduction to all aspects of Down's Syndrome and widely considered to be the standard work on the subject. Most of the original photos from the older edition have been replaced by more up to date ones. The book deals sympathetically with its subject and Cliff Cunningham is an expert in his field.
MEDICAL AND SURGICAL CARE FOR CHILDREN WITH DOWN SYNDROME: A GUIDE FOR PARENTS
Ed. D.C. Van Dyke, M.D., Philip Mattheis, et al.
Pub. Woodbine House 1995, ISBN 0933149549, £13.99
An American book written by twenty five authors who are experts in their various fields including heart problems, ear, nose and sinus conditions, gastro-intestinal problems, dental concerns, immune system problems, leukaemia, and many more. It is comprehensive and gives parents a complete and easily understandable guide to all the medical conditions that are more common among children with Down's Syndrome.
BABIES WITH DOWN SYNDROME: A NEW PARENTS GUIDE (2nd edition)
Ed. Karen Stray Gunderson
Pub. Woodbine House 1995, ISBN 0933149646, £14.50
This really is a new parents guide and an extremely good one. It is most informative while remaining compassionate and easy to read. The first book that parents and professionals should turn to for information on Down's Syndrome. Newly revised and written by parents, doctors, nurses, teachers and lawyers who cover everything parents need to know from prenatal testing and early intervention to cardiac and other medical issues. Although it is an American book we would recommend it to anyone.
DOWN SYNDROME: ADVANCES IN MEDICAL CARE
Ed. Ira Lott, and Ernest McCoy
Pub. Wiley Liss 1992, ISBN 0471561843, £35.00
An American textbook written primarily for professionals but covers all aspects of medical care including clinical advances in many areas such as cardiovascular problems. The discussion of many healthcare issues will be of interest to parents who don't mind some heavy medical jargon.
JOHNNY: A TRIBUTE TO LOVE
By Jill Luntz
Pub. Arthur J. Stockwell 1994, ISBN 0722328516, £3.99
A wonderful little book to encourage any parent of a child with Down's Syndrome to treasure every moment. A heart warming story written by a mother about the life of her beloved son who died at 14 years of age.
TOO DEEP FOR TEARS
By Sarah Boston
Pub Harper Collins 1994, ISBN 044408919, £7.99
The sequel to "Will My Son", this book celebrates what should have been Will's 18th birthday. Written in the same honest and direct style this unique work looks at the changes society's attitudes to Down's Syndrome over the last two decades. The affect of the publication of "Will My Son" on Sarah and her family is discussed as well as attitudes to infant death, maternal grief, and antenatal testing. A very emotional and touching book.
LIVING WITH GRIEF
By Dr. Tony Lake
Pub. Sheldon Press 1996, ISBN 0859694267, £6.99
Dr. Lake's sympathetic book describes all the different aspects of grief following bereavement. He shows how it progresses through phases and how to work through and come lo terms with it. Special chapters on sudden loss, the death of a child, and a parent, are included as well as help for those who know they are dying.
THE BEREAVED PARENT
By Harriot Sarnoff Schiff
Pub. Souvenir Press 1992, ISBN 0285 64891 8, £6.99
The classic work on recovering from the death of a child. Written by a woman who lost her own son, this is a book for parents at any stage of anguish: whether they have just buried a child, or are caught up in the turmoil and depression of the long aftermath.
YOU'LL GET OVER IT. THE RAGE OF BEREAVEMENT
By Virginia Ironside
Pub. Hamish Hamilton 1996, ISBN 0241 00222 2, £16.00
Drawing on other people's accounts as well as her own experiences of bereavement, the author has written a book of extraordinary honesty and insight, telling the truth about the bereavement as it is, not as it ought to be.
BADGER'S PARTING GIFTS
By Susan Varley
Pub. Collins, ISBN 000664317 5, £4.50
This sensitive children's story can help them come to terms with the death of those they love. When old badger dies, his friends think they will be sad forever. However, gradually they are able to remember him with joy and treasure the gifts he left behind.
WATER BUGS AND DRAGONFLIES: EXPLAINING DEATH TO CHILDREN
By Doris Stickney
Pub. Pilgrim Press 1982, ISBN 0264 66904 5
This little story is a way of explaining death to children by using the analogy of the water bug's short life underwater as mans time on earth and their emergence as dragonflies into the bright sunlit world as mans life after death.
DOWN'S SYNDROME; RESEARCH AND PRACTICE (JOURNAL)
Vol 1, 1993, Nos l - 3
Vol 2, 1994, Nos 1 - 3
Vol 3, 1995, Nos 1 - 3
Vol 4, 1996, Nos 1 - 3
Pub. University of Portsmouth
Down's Syndrome: Research and Practice is the only international journal that focuses on current scientific research involving persons with Down's Syndrome. It is the only journal for original research papers on the development of therapeutic and educational needs of people with Down's Syndrome and papers which evaluate interventions and professional practice. Some of the information can be quite technical and detailed and is mainly for professionals. However, it can be extremely interesting for parents to read in up to date research detail about everything from language development, psychosocial disorders and Thyroid Dysfunction to Ocular disorders, and school integration.
|Revised: December 19, 2005.|